Still in Chicago

We are still in Chicago. The cyclotron in Oklahoma is still not working despite various whizz kids being flown into try and fix it. We are at the cutting edge of medical technology and know we are lucky to be able to get this treatment to Thomas, but living in a hotel for over a week with a nearly 2 year old is challenging to say the least!

The frustrations not withstanding, the two Oklahoma Procure staff who came with us are doing an amazing job of trying to keep this motley band of brothers functioning. Despite the various eating requirements, medical appointments, arrogant anaesthetists (and subsequently upset British doctors), supermarket trips all mixed up with the anxiety of needing cancer treatment have made their jobs even more difficult than normal, but I haven’t seen two people more dedicated to their patients and charges for a very long time.

Ted and Thomas have been in to Chicago proper  twice in the last week (the proton centre is about 50 mins away in one of the western suburbs.) The first time we went in for a river and lake tour with all the Oklahoma procure patients and staff. Chicago is a beautiful city with fascinating and ornate architecture, albeit coupled with a reputation for crime and traffic jams! The second time we went to see a family friend who gave Thomas the run of the garden and Ted the opportunity to read the paper in peace – a well earned change of scenery for us both!

We are making new friends here. Each of the families have a brave and normally sad story to tell, but being together in this contained way has allowed us to share those stories and find amusement in the lighter sides of having proton therapy. We’ve also had to say goodbye to Lily and her parents and aunt, who left us on Sunday to return to Birmingham. Lily was Thomas’s age with a similar diagnosis and we had good fun chatting about American idiosyncracies. We wish them the very best and hope that we stay in touch.

The mums swap over today. Kitten (Becca’s mum) is landing in London as we write this and Sally (Ted’s mum) arrived in Oklahoma tonight. All our family has made changes and sacrifices to their summer plans for us and we are so grateful for their help.

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About thomasgwynadams

Thomas Adams was diagnosed with a rare type of brain tumour called an anaplastic ependymoma. This blog tells his ongoing story and struggle against cancer.
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5 Responses to Still in Chicago

  1. Lucy Glen says:

    I love reading the updates guys…cannot believe you’re still having to be separated – it must be hard…but worth it in the end no doubt. Thomas looks so grown up in these latest pics – such a happy boy! Lots of love to you all and hope Becca & Evan are doing well. x x x

  2. Nick Radcliffe says:

    Hi guys. I still keep a look out for your updates and am thinking and praying for you. What a rough time you’re having, with so many obstacles to face! Praying the treatment goes more smoothly soon, and that you can all get back to being in one place!

  3. Beccy Vinter says:

    You really couldn’t write this! Any film of this would be scoffed at for being so far fetched with this amount of adversity. And yet here you are…. Thomas seems to doing well, always grinning in photos. Hope they get the proton thing fixed soon so you can all be together as a family again. Love to you all. Beccy & Ben x

  4. Liz Anderson says:

    So sorry you’re still separated. Thinking of you all and hoping that you are back together soon. Hotels and small children are not the best combination are they? … but they do love the lifts as I remember!
    Lots of love to all from Liz, Gerry and Arwen xxx

  5. Rebecca says:

    Hello,
    We are friends of Flora Roberts and live in Chicago, near the University of Chicago. We have a 3 and 5 year old and would love to play with you if Thomas can be exposed to germs. If he can’t, one of us adults would be happy to drive out and drop off a meal (or anything else you need!). My e-mail is: rfk101@yahoo.com

    Rebecca and Steve
    Jonah (5.5 years) Ellie (3.5 years)

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